After considering the possibility of having to wear long sleeve shirts and pants all summer on Doxycycline due to the severe photo sensitivity as a side effect, I decided to go a different route and forgo being miserable during the one season of the year that I am enthusiastic about.
I am on 1,000 mg of Biaxin a day with 400 mg of Plaquenil along with a Magnesium supplement and 60 billion probiotics. Last night, I felt a little caffeinated for a lack of a better word, and counted my pulse at 85, which supposedly is still normal for an adult. I would just describe how I felt as "strange".
This morning I woke up with the best of intentions, but shortly after I took my dose with food, I started to deteriorate quickly. I had read that it was helpful to the antibiotics working to go to the gym and to sit in the sauna, so that is what I set out to do. Unfortunately, I felt so horrible that I realized I had better buy some epsom salts (also recommended to help remove toxins) and head home before I fell down and couldn't get home. For some reason my eyes felt extremely heavy and puffy, I think because I was so exhausted even after 9 hours of sleep.
I would liken how I felt today as very similar to having the flu, just a little different in ways I can't quite pinpoint. I could feel every single bone, joint, fiber, and muscle today. It felt like every part of me hurt at least once. It was kind of like a lot of my bad days all rolled up into one. I also felt more mentally slow than usual and found I had a hard time talking on the phone more than usual. I would describe the difficulty I have with speaking to be like Aphasia, which commonly affects people who have strokes. I struggle to find the words I am trying to say, and often they come out all jumbled or I repeat them a bunch of times without meaning to, or I stutter.
I took an epsom salt bath for about 15 minutes and then took a couple hour nap. I felt a little better when I ate dinner, but now I am feeling hit by a bus again and wondering how many days will be like this. I am considering calling the doctor for pain killers but am nervous about overloading my liver too much since the medications I am on already require me to get my liver checked frequently.
The only other side effect I can tell so far from the medication is a funny sort of metallic taste in my mouth. Thankfully, I haven't had to deal with the baldness, loss of vision, or hallucinations so far, but I won't count my chickens before they hatch. You should google Biaxin and Plaquenil if you are considering taking them. A lot of people with Lyme say they get good benefits from that combination, but a lot of people also complain of very disruptive side effects.
Hopefully tomorrow will be better. I have a friend coming to visit and we are planning to go to the beach. I will, as I have always tried, not give up on living life because of how terrible I feel. Sadly enough, I have almost gotten used to feeling like a bucket of rusty nails, its really the thought of this lengthy treatment that really concerns me the most.
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